#InspireEveryBreathOur hashtag says it all!
We believe that our efforts can make a huge difference to make each day a better place for people living with cystic fibrosis. Join us in order to make an impact and bring about transformation for those living with this disease. Our goal is to be a catalyst for more dreams to be realized and more lives to be improved. We help people in the CF community work together towards a more empowered and satisfying life.
We are a CF family, fighting for other CF families.Our vision for Piper’s Angels is to provide the most innovative social solutions to support the CF community. We want to rally our CF community to support each other and bring forth compassion and love as tools for dissolving the isolating barriers of this disease and manifesting a brighter future for all people with CF.We encourage those who are fighting this battle courageously to reach out to us with ideas on how we can better serve our community.
Piper is our inspiration and guiding light. By empowering her, we hope to lift the hearts of others.
What is cystic fibrosis?
Cystic fibrosis is a life-threatening disease that causes mucus to build up and clog some of the organs in the body, particularly in the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that leads to lung damage. Mucus also can block the digestive tract and pancreas. The mucus stops digestive enzymes from getting to the intestines. The body needs these enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.
How do people get cystic fibrosis?
Cystic fibrosis is a genetic disease. To have cystic fibrosis, a person must inherit two copies of the defective CF gene — one copy from each parent.
Who gets cystic fibrosis?
Approximately 30,000 people in the United States have cystic fibrosis. An additional 10 million more — or about one in every 31 Americans — are carriers of the defective CF gene, but do not have the disease. The severity of cystic fibrosis symptoms is different from person to person.
For more information, please click here.
The Forum for Nonprofits 